Category: Security
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Commentary: Data Protection and the Promotion of Health Research: If the Laws Are Not the Problem, Then What Is?
Data protection laws offer such broad exemptions for research that research ethics boards and data custodians lack sufficient guidance as to when it may be acceptable to release data to researchers without consent. The result: idiosyncratic institutional policies that create major challenges for researchers conducting multi-centred studies. The 2005 CIHR Best Practices for Protecting Privacy…
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Commentary: Data Protection and the Promotion of Health Research
The paper by Valerie Steeves provides a well-presented series of arguments concerning research access to personal health information. Her perspective is clear, and her voice often challenges some of the stereotypic attitudes and values she attributes to the perspective of research interests when confronted with privacy protection policies and practices.