Tag: personal-health
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Barriers impede provider use, endorsement of PHRs
The low adoption rate of personal health records by consumers may be caused in part by problems that providers are having with the systems, according to a new study published in the Journal of Medical Internet Research . read more
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Study Shows that Patient Access to EHR Data is “Empowering”
Sharing data contained in electronic health records with patients offers a number of benefits, according to a recent study in the Journal of Medical Internet Research . Patient access to health data contained in an EHR system has been a hotly debated topic recently so it’s interesting that some researchers, from the Veteran’s Administration and…
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University of Mississippi Medical Center Notifies Patients of Data Breach
The University of Mississippi Medical Center (UMMC) has issued a breach notice to an unknown number of patients after a laptop containing patients' personal health information had been lost. The University of Mississippi Medical Center (UMMC) has issued a breach notice to an unknown number of patients after a laptop containing patients' personal health information…
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The Whole Is Greater Than the Sum of the Parts: Using Data Linkage and Cohort Designs to Create Data Synergy at MCHP
The Manitoba Centre for Health Policy (MCHP) has been called a "data-rich environment" (Roos et al. 2004). Indeed, the depth and breadth of the data justify this description – there are currently nearly 100 databases held in the Population Health Data Repository ("the Repository") at MCHP, with some containing data back to 1970. And the…
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Sorry, You Can’t Have That Information: Data Holder Confusion Regarding Privacy Requirements for Personal Health Information and the Potential…
This study, conducted in Newfoundland and Labrador, assessed the level of awareness, perceptions and concerns of healthcare providers, health researchers, data managers and the general public about the collection, use and disclosure of personal health information (PHI) for research purposes. Data collection involved surveys and follow-up focus groups with participants. Results indicate a poor understanding…
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Commentary: Data Protection and the Promotion of Health Research
The paper by Valerie Steeves provides a well-presented series of arguments concerning research access to personal health information. Her perspective is clear, and her voice often challenges some of the stereotypic attitudes and values she attributes to the perspective of research interests when confronted with privacy protection policies and practices.